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Y
2023-10-4 15:40:51

The work of the Ara Parseghian Medical Research Fo...

The work of the Ara Parseghian Medical Research Foundation is truly remarkable. Their dedication to finding a cure for Niemann-Pick type C disease is unparalleled. I am in awe of the progress they have made and the impact they have had on the lives of those affected. It is organizations like this that give hope to families and inspire others to make a difference. Thank you for all that you do!

A
2023-9-9 12:21:30

The Ara Parseghian Medical Research Foundation is ...

The Ara Parseghian Medical Research Foundation is making a profound difference in the field of medical research. Their focus on finding a cure for Niemann-Pick type C disease is commendable. I have been following their progress closely, and it's clear that they are making significant strides in their mission. I am hopeful that their work will lead to improved treatments and ultimately a cure for this devastating disease.

R
2023-8-30 3:25:01

I recently came across the Ara Parseghian Medical ...

I recently came across the Ara Parseghian Medical Research Foundation and was inspired by their mission. They are working tirelessly to find a cure for Niemann-Pick type C disease, and their efforts have already yielded promising results. The impact they have had on the lives of those affected by this condition is significant. I am grateful for their dedication and proud to support their cause.

D
2023-7-8 13:38:54

😊 I am truly impressed with the Ara Parseghian Med...

😊 I am truly impressed with the Ara Parseghian Medical Research Foundation and the work they are doing in the field of medical research. Their commitment to finding a cure for Niemann-Pick type C disease is truly remarkable. They have achieved significant milestones in this pursuit and continue to make a positive impact. Kudos to the team for their outstanding efforts! 👏

M
2023-6-30 0:41:58

👍 I want to express my appreciation for the Ara Pa...

👍 I want to express my appreciation for the Ara Parseghian Medical Research Foundation. They are doing an amazing job in the field of medical research. Their commitment to finding a cure for Niemann-Pick type C disease is truly commendable. The foundation has made significant advancements and continues to make a positive impact. Keep up the good work! 👏

D
2023-6-13 6:51:00

🙌 I am extremely impressed with the Ara Parseghian...

🙌 I am extremely impressed with the Ara Parseghian Medical Research Foundation and the remarkable work they are doing. Their dedication to finding a cure for Niemann-Pick type C disease is truly inspiring. They have made significant strides in their research, and their efforts have already positively impacted the lives of many. Thank you for your outstanding commitment to making a difference! 👏

D
2023-6-6 10:57:40

I am writing to express my admiration for the Ara ...

I am writing to express my admiration for the Ara Parseghian Medical Research Foundation and the valuable work they are doing. Their dedication to finding a cure for Niemann-Pick type C disease is truly extraordinary. The progress they have made so far is remarkable and offers hope to those affected by this condition. Thank you for your commitment to making a difference!

J
2023-3-23 6:10:15

I recently came across the Ara Parseghian Medical ...

I recently came across the Ara Parseghian Medical Research Foundation and was amazed by the progress they have made in their mission. Their dedication to finding a cure for Niemann-Pick type C disease is commendable. Their research and advancements offer hope for families affected by this condition. I am grateful for the impact they are making and the dedication of their team.

U
2023-3-15 14:18:56

I recently learned about a foundation that is maki...

I recently learned about a foundation that is making a significant impact in medical research. They are focused on finding a cure for a specific disease and have made impressive progress. I am inspired by their dedication and the resources they have invested in their mission. It is heartening to see organizations like this working tirelessly to make a difference.

A
2023-2-23 10:43:22

I have been following the progress of the Ara Pars...

I have been following the progress of the Ara Parseghian Medical Research Foundation for some time now, and I am incredibly impressed by their work. They are dedicated to finding a cure for Niemann-Pick type C disease and have achieved significant milestones in their research. Their commitment to improving the lives of those affected by this condition is truly inspiring.

J
2023-1-5 14:40:17

The Ara Parseghian Medical Research Foundation has...

The Ara Parseghian Medical Research Foundation has been doing exceptional work in the field of medical research. Their commitment to finding a cure for Niemann-Pick type C disease is truly inspiring. I have been following their progress for a while now, and I must say, they have not disappointed. The dedication of their team is evident in the results they have achieved. I am grateful for their efforts and the hope they bring to families affected by this devastating condition.

V
2022-12-31 1:03:38

👍 The Ara Parseghian Medical Research Foundation i...

👍 The Ara Parseghian Medical Research Foundation is doing incredible work in the field of medical research. Their dedication to finding a cure for Niemann-Pick type C disease is commendable. Their efforts have already had a positive impact on the lives of many. I am grateful for their work and hopeful for the future. Keep up the good work! 👏

E
2022-12-14 2:19:11

I recently came across an organization that is mak...

I recently came across an organization that is making a significant impact in the area of medical research. The work done by this foundation is impressive and holds great promise for the future. They are focused on finding a cure for a specific disease and have made remarkable progress. I am impressed with their dedication and the resources they have invested in their mission. Keep up the good work!

Про Ara parseghian medical research foundation

Фонд медичних досліджень Ара Парсегіана: пошук ліків від хвороби Німана-Піка типу С

Фонд медичних досліджень Ara Parseghian є некомерційною організацією, яка займається пошуком ліків від руйнівної хвороби Німана-Піка типу С. Це рідкісне та смертельне генетичне захворювання вражає дітей та молодих людей, спричиняючи прогресуюче неврологічне погіршення, судоми та, зрештою, смерть. Фонд був заснований у 1994 році легендарним футбольним тренером «Нотр-Дам» Ара Парсегіаном після того, як у трьох його онуків діагностували хворобу.

З моменту свого заснування фонд займався фінансуванням досліджень причин і потенційних методів лікування хвороби Німана-Піка типу С. Завдяки партнерству з провідними медичними установами та дослідниками в усьому світі вони досягли значного прогресу в розумінні цього складного розладу.

Однією з ключових сфер діяльності фонду було виявлення потенційних лікарських засобів, які могли б уповільнити або зупинити прогресування хвороби Німана-Піка типу С. Вони підтримали численні клінічні випробування, спрямовані на випробування нових ліків у пацієнтів з цим захворюванням, включаючи кілька багатообіцяючих сполук, які показали ранні ознаки ефективності.

Окрім роботи над розробкою ліків, фонд також підтримує фундаментальні дослідження щодо розуміння того, як хвороба Німана-Піка типу С впливає на клітини та тканини організму. Це включає дослідження того, як метаболізм холестерину порушується у хворих, а також дослідження інших клітинних шляхів, які можуть брати участь у патогенезі захворювання.

Іншим важливим аспектом їхньої роботи є підвищення обізнаності про хворобу Німана-Піка типу С серед медичних працівників, політиків та представників громадськості. Розповідаючи іншим про цю рідкісну хворобу та її руйнівні наслідки для сімей, уражених нею, вони сподіваються збільшити підтримку дослідницьких зусиль, спрямованих на пошук ліків.

Загалом, місія Фонду медичних досліджень Ара Парсегіана чітка: знайти ліки від хвороби Німана-Піка типу С за допомогою інноваційних дослідницьких ініціатив, які об’єднують експертів з різних дисциплін. Завдяки постійній підтримці донорів у всьому світі вони впевнені, що зможуть реально змінити життя тих, хто постраждав від цієї жахливої ​​ситуації.

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Ara parseghian medical research foundation

Ara parseghian medical research foundation

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