As a parent of a child with a rare genetic conditi...
As a parent of a child with a rare genetic condition, I have found the support provided by Syndromes Without a Name (SWAN) Australia to be invaluable. The resources and information available on their website have been extremely helpful in understanding and managing my child's condition. The online support groups and forums have also provided me with a sense of community and connection with others who are going through similar experiences. I highly recommend SWAN Australia to any parent or caregiver of a child with a rare genetic condition.